Chronic pain

My chronic Tummy pain has started up again i am trying to not let it make as bad as it used to.

I think by keeping my mind off it and trying to focus on other things will help. I hope my tube change on Thursday gives answers

My favourite places to relax

Many people have a space they find it easiest to relax. One of my favourite places to relax is anywhere with water. It can be the beach or even a nice relaxing shower.

In the winter I love to snuggle in my warm bed and read. I love listening to nice soothing music and having a nice massage.

City to surf

On Sunday I did my first city to surf walk with my walking group. Achillies sydney is a walking group for people with disabilities mostly visual impairments.

We walk every sunday around the botanical gardens. A guide takes me and I walk in my walker. When I get tired I sit on my walker and get pushed.

We do different events and usually, I would do the short walk but this time I did one that was 14 kilometres. I mannaged to walk half of it. I love doing this because it gets my excersise up, keeps me fit and i get to see different people.

Genes for jeans day

Last Friday was jeans for genes day. I actually have a genetic disorder. CHARGE syndrome is partly a genetic disorder as in there is a gene but not everyone will have the gene

It is very complex but it isn’t hereditary and is like a pot luck kind of thing. It can also be diagnose clinically. I am clinically diagnosed as there was no gene when I was born.

Over the years as more has been discovered they have changed the way they diagnose it but basically you need to have at least half of the features

I find awareness is a wonderful thing for many different things. The more we learn the more we understand.

Life updates

I thought I would give a life update. I am still doing really well with my health. I did have a couple of winter cold things but I have managed to stay fairly good. I even put on a bit of weight.

I am also back to normal with my daily activities after two years of COVID madness. I am very happy with how things are and am happy. My anxiety and other things are less to.