At the weekend mum and me went to Uluru for 2 nights. We wanted to go somewhere different. Uluru is a big rock in the centre of Australia. The rock is a very special sacred place for many indigenous Australians.

On Friday morning we arrived at the airport where there was a huge line for check-in and people everywhere. After checking in we boarded the plane

When we go there we checked into our room and relaxed. In the evening we had a sunset your. The colours were amazing over the rock. There was food and drinks and we talked to the other people while watching the sunset.

On Saturday we went on a sunrise your. Again the colours were amazing after some breakfast we went for a drive around the rock and a walk to a water hole. We also saw a cave which had paintings it was beautiful. The rock is so big and amazing. No one can climb uluru anymore but you can walk around it. The paths are red and very sandy so hard for a chair.

After that, we had a walk around the town centre at the shops and then relaxed in our room. In the evening we did sounds of silence dinner with the field of the light tour. The dinner was a three-course meal and the lights were an installation of amazing lights We listened to a didgeridoo and someone told us about the stars we see. Being in the middle of no where the sky was bright with stars not like in the city where all the lights hide everything.

On Sunday morning we went on a helicopter ride over the rock. It was amazing. We then went to the airport to come home. Our plane was delayed and we got home at 10 pm.

The weather was beautiful lovely warm sunny days with cool nights. I would love to go back and explore more of the area and look at the area.

Is anyone reading?

Ever get the feeling like you are talking to yourself? I feel like that when I post in here lately. So my question is are people reading? Are you enjoying it?

I write the blog to share my perspective on things, get things off my chest and also spread awareness about CHARGE syndrome. I love to know people are liking what I say and are finding it interesting.

Benefits of respite

For me respite has many good benifits to being in respite. First I get to give my mum a break and some space.

Not only to I get to be with my friends but I get to practice giving people space and doing my own thing.

I also learn independence and get to gain new skills or improve on old ones especially social skills. I have great support workers who help me improve every day.

The best thing about respite is that it is the same house as my life skills programme. This means I can just stay in the same place

Disability pride month

July is Disability pride month. It is a month where we educate people about our disabilities. We need to show people that we are all still people with feelings. We just can’t do things the same way others can.

People with disabilities just want to be accepted. I find most people are very accepting and good but there are still some that will not understand me or how to interact with me and my friends.

I think there are a few simple steps everyone should keep in mind when meeting a disabled person. First always assume they can understand. Someone might be nonverbal and communicate but they might be able to carry on a long detailed conversation. Also remember to take the time to get to know the person.

Another step people need to take is open to learning. For me my syndrome is fairly rare so the more I tell people the more aware they will be. When you learn you can then help to inform others

The last tip is to remember that we all have feelings and thoughts too. Always listen and be open to whatever you see. I for one love being with friends and family but some people prefer being alone.

No matter what the disability most of the people I know are lovely, kind, genuine people who love to get out and have fun.