Covid vaccine

Finally the Covid vaccine has hit Australia. I am getting mine on the 13th of April as my Drs feel it will be good for me with my tummy. My gastro dr feels that Covid could impact other organs wich we don’t want. She is also worried about further gut and bowel problems so wants me to have it ASAP.

I feel that it is important for people to make the choice but I do feel that anyone that is at risk should consider it. Vaccines can be a tricky topic to navigate and care needs to be taken when thinking about the best option.

For me I am happy it is out and that it will hopefully give people a bit more freedom. This won’t mean we can stop doing all the hygiene stuff but we will be a bit more free to do more things.

Covid will always be around just like other things are still around but if we can lessen the impact I am happy with that.

I am getting it done at my local GP who is right across from the hospital so can get there easily if anything happens. Hopefully all will be good and we can all relax a bit more.

Please be aware these are just my thoughts. I am not telling anyone to get it.

Another stomach update

I managed 6 months out of hospital with my gut.

I ended up needing to back in again last week because I had terrible pain and reflux again. They are now saying it is constipation again and gas. My Dr thinks I may of been on the same medication for to long and we need to mix them up.

It is also believed a lot of people with charge have problems with the bunch of nerves that works with the gut and more research needs to be done into this area and not just the cranial nerves. Some even need a tube where stuff is flushed to help the bowels move. Some also need a hole stoma. I am hoping I won’t need this but it is possible I may in the future.

I think that more research needs to be done to really know or have any idea of what’s going on. I feel like some people are quick to look for the obvious and not go deeper in to see the hole picture. I am happy I have a great team that is willing to learn and try their best to help me. There may never be one answer but maybe many answers that all fit together like a puzzle. One day it will all come together and I hope it happens soon.

Respecting our personal space

Quite often people with disabilities have to put up with strangers touching their chair or equipment without asking.

This can be annoying because it takes away the freedom and independence that they work so hard to gain.

If people think someone may need help they should ask the person is ok or how they can help. usually people are happy to get help if they are asked.

People also need to remember people with disabilities have spent years getting things right so give them a chance.