A couple of weeks ago I saw my gastroenterologist for a check up. She was happy to see me doing better. We have halved my lactulose and have agreed that for now I am stable. We are deferring my tube change till next year to reduce anesetic problems.

My hearing has completely gone in the right ear and I haven’t heard properly in over a week. I see the audiologist on Thursday and am hoping it is the hearing aid otherwise I may need a cochlear implant. My ear anatomy is wonky so we want to avoid as long as possible.

My anxiety and ocd is slowly getting better but I still have bad days.

My pain is doing better the new medicine is very hqrd to put down my tube so I don’t know if I am even getting any at all.

I am hoping to stay stable for a long time but time will tell.