Medicine changes and its effects

About 2 months ago I went to the pain Dr who decided I needed a new medicine that would help every thing. it was poorly managed and did not help at all.

The Dr said that my pain is probably to do with the nerves in my tummy and bowels not communicating with my brain and the fact I have had so many surgeries. Motility and my long narrow stomachache plays a role to. To help he decided to try a med that could help but at the same time help my anxiety and ocd. After weaning off the old medicine we waited for the new one to take effect.

After about two weeks I was getting worse and worse, Not only was the pain not getting better but my moods were going out the window and so was my anxiety. I ended up in hospital after a very bad day where my main Dr wanted to put my old medicine back but pain Dr just upped the other one. The gastro Drs put in a new form of tube wich seems to be helping the reflux.

Last week I went back to my pain Dr who saw I really needed the old medicine and has agreed to put me on it and take other away. I am weaning back on to the new one and it is slowly starting to work but I am still very anxious and moody. I am also very paranoid and just can’t cope. On Thursday I am going to start neuro feedback again to hopefully help me get my head back into a better state.

I feel no one except the gastro Drs and the lady who does the therapy have listened to me or mum. The pain doctor looked after me 20 years ago and may of forgotten just how bad I can get.

I think when trying new things people need to monitor closely but I can understand with the uncertainty around COVID that can be hard as everyone wants to be seen at once before the likely event of another lockdown. Hopefully i will be feeling much better in a few weeks because I know I am very hard to put up with just now.

Friends and having a disability

Lots of disabled people have trouble making and keeping friends. The reasons can be numerous.

For me i have many friends some who are closer than others but the hardest part is a lot live far away and rely on others to be free for me to see them. So some people I can only see if their mum or a carer a free to help them.

One of the best ways to keep in contact is by using messenger or Facebook. While I can type some people require someone else to type for them. Because I am deaf talking on the phone can be hard. I do like messenger video calling and texting.

When I was little my friends were the people who looked after me in hospital and were older than me. Now days there is a mix of different people. Some i talk to often others not so much.

I find people including me call people friends when really they are aquantances. This mostly happens with Facebook and instagram. People just add for the sake of it. On my Facebook and instagram I have my CHARGE people many of whom I consider good friends. Then I have on Facebook my friends through my game of farm town. Some are very good friends and others are people I just have for the game. The rest are old school friends family and people from lifeskills and work. Some of these are definitely closer than others. Instagram is a bit similar but I have other people with other disabilities that I find through my CHARGE people or tags. Also I follow things I like on there like the gardening Australia page. I often will clean out my lists and keep those I feel a connection to and talk to often.