There has been a lot of research into the autonomic nervous system. It is something not much is known about but they are starting to think it plays a roll in my tummy problems.

Last week I ended up in hospital with my tummy pain and needed fluids by a drip. I am now only able to handle 100 mils per hour in my pump and no food orally.

This is becoming very common in CHARGE and more research is needed to better understand what to do and why it happens. Other things that can happen are drops in blood sugar and blood pressure. At home we don’t take any notice as I am ok but in hospital they check everything and want to fix.

I see my dr in two weeks and hopefully she will have ideas.