Another hidden part of CHARGE SYNDROME is stomach and bowel problems. I have these constantly. Often I vomit or reflux and I have severe pain wich no one knows why.

Lots of CHARGE people have feeding troubles and need a feeding tube. Some even need IV nutrition, wich i needed for 5 years.

Some need many surgeries and tests. I myself have had 2 thirds removed and a loop of bowel. I also had my gall bladder out.

It fustrates me to be in pain daily and I often want to scream at people to fix me.

Drs believe the vagas nerve plays a roll in alot of stomach problems. When they can fix that then we will know how to fix me.